Living with
Fabry disease is
challenging physically
and mentally.
Living with
Fabry disease is
challenging physically
and mentally.
Physical symptoms can often lead to feelings of fatigue, depression, and anxiety. This can include:
Pain
Burning or prickling sensation in hands and feet, sweating, trouble tolerating heat and cold
Kidney
Kidney damage and advanced kidney disease, protein in the urine
Gastrointestinal (GI) issues
Abdominal pain, bloating, gas, indigestion, nausea
Heart
Fast-beating, fluttering, or pounding heartbeat, chest pain, high blood pressure
Fatigue
Feeling tired or drained from normal daily activities or lack of quality sleep, ongoing pain, inflammation, and depression
Brain
Mental health concerns, such as feelings of depression or anxiety
Fabry impacts your emotional wellbeing.
There's the challenge of managing the physical symptoms of Fabry disease - and that's a lot. But facing that challenge every day can take a toll on your emotional health as well. Having a chronic, progressive condition can make you feel alone. You may feel sad or mourn activities you find difficult due to pain or other symptoms. You may feel unsure about having a genetic disease and what this means for having a family. All these things have an impact on your overall wellbeing and are just as important to address as the physical symptoms of Fabry.
If you are struggling with your emotional or mental health, you are not alone.
There are resources that can help and community support is available. Click below to find downloadable tools, watch videos, and join free webinars designed by people living with Fabry disease.
